What Raising a Child With Down Syndrome is like for me.
Raising children is a hard job for any parent, one does not take a class in school on how to be a parent. Children differ so much, some might have very strong-willed personalities where others are more laid back. But, since I believe that the Bible is a book that was written as a guide to us humans that was inspired by God. One is not with out help at raising even the most trying child.
Raising a child with Down Syndrome has its own challenges that are different from raising a typical child. One of the biggest challenges and sometimes the scariest is medical. At five month's of age Adrian under went his first operation. It was on his heart, he had and AV Canal repair done. Before his surgery he was on heart medication and his formula was a scoop more per ounce. I was so scared for I was fearful that I would wake up and fine that he had died during the night. That could be why I am such a light sleeper now. He came out of heart surgery with flying colors. No more heart medicine for Adrian, he is now sixteen years old.
During that time while in the operating room, I did a lot of tearful praying for the doctor's hand to be steady and that the surgery was a success. Because of what my son had to go through as a baby. I have often referred to Adrian as being my miracle baby. I once heard somewhere that a human doctor can make cuts on the flesh but it takes God to heal those cuts.
Adrian is know 16 years old and since his heart surgery, he also has had a number of tubes put into his ears. Adrian does not hear like he should. he does not talk but he is vocal. Communication has been a big challenge for us. I communicate with Adrian through the use of pictures. I tried simple sign language but he just did not take to that. As his parent, I am very disappointed in the early years of his education. I tried to get him to wear hearing aides, but the teacher did not follow through at school with his hearing aides. I even spent a week down in Iowa City at the Disability Clinic to get help with Adrian wearing his hearing aides. But even after that his teacher did not make that as a goal for him. It is sad because I feel Adrian could be talking if he had the right intervention from the very start of his schooling. I once saw a Down syndrome adult that wore earring aides in both ears. And I also heard him talk. It may not have been as plan as how you or I speak but it was understandable.
Adrian has gone blind in one eye, which I only which I could have prevent it. But, Adrian did not show any signs of him not being able to see out of that eye until it was to late. But he was able to let me know that he was having trouble out of his good eye, which he under went the surgeon knife once again this time it was to save his sight in that eye. the retina needed to be reattached before it came completely loose. here is a picture of Adrian shortly after his eye surgery.
Raising a child with Down Syndrome has its own challenges that are different from raising a typical child. One of the biggest challenges and sometimes the scariest is medical. At five month's of age Adrian under went his first operation. It was on his heart, he had and AV Canal repair done. Before his surgery he was on heart medication and his formula was a scoop more per ounce. I was so scared for I was fearful that I would wake up and fine that he had died during the night. That could be why I am such a light sleeper now. He came out of heart surgery with flying colors. No more heart medicine for Adrian, he is now sixteen years old.
During that time while in the operating room, I did a lot of tearful praying for the doctor's hand to be steady and that the surgery was a success. Because of what my son had to go through as a baby. I have often referred to Adrian as being my miracle baby. I once heard somewhere that a human doctor can make cuts on the flesh but it takes God to heal those cuts.
Adrian is know 16 years old and since his heart surgery, he also has had a number of tubes put into his ears. Adrian does not hear like he should. he does not talk but he is vocal. Communication has been a big challenge for us. I communicate with Adrian through the use of pictures. I tried simple sign language but he just did not take to that. As his parent, I am very disappointed in the early years of his education. I tried to get him to wear hearing aides, but the teacher did not follow through at school with his hearing aides. I even spent a week down in Iowa City at the Disability Clinic to get help with Adrian wearing his hearing aides. But even after that his teacher did not make that as a goal for him. It is sad because I feel Adrian could be talking if he had the right intervention from the very start of his schooling. I once saw a Down syndrome adult that wore earring aides in both ears. And I also heard him talk. It may not have been as plan as how you or I speak but it was understandable.
Adrian has gone blind in one eye, which I only which I could have prevent it. But, Adrian did not show any signs of him not being able to see out of that eye until it was to late. But he was able to let me know that he was having trouble out of his good eye, which he under went the surgeon knife once again this time it was to save his sight in that eye. the retina needed to be reattached before it came completely loose. here is a picture of Adrian shortly after his eye surgery.
It was a battle trying to keep his good eye covered up. It being covered up like that Adrian was completely in the dark. The things on his chest is the way the doctor during surgery monitor his vitals.
Here is a picture of Adrian waiting to catch the school bus.
Comments
Post a Comment